Welcome to OatAllergy.com

A year ago, I purchased the domain name “oatallergy.com” for a few reasons. Our daughter was diagnosed with milk, peanut, and oat allergies at ten months old. While her milk and peanut allergies were far more severe than her oat allergy, the problem we ran into was how little information and accommodation there is for oat allergies.

Most product nutritional labels follow up the ingredients with a bold line saying something like “Contains Milk, Peanuts, and Eggs”. This is very handy for the milk and peanut allergies, but oat ingredients are not explicitly stated like this. So, parents dealing with oat allergies have to be very careful with what they buy, especially since oats can be listed in many different ways (such as rolled oats, oat flour, hydrolyzed oats, and avena sativa).

A while ago, a friend of mine posted on his blog that he was working with Whole Foods and was looking for tips on what information they could serve to online customers. I recommended providing more information about rare allergies, such as oats. A couple months later, I received an email from someone that saw that comment and was trying to find more information about oat allergies for a friend of hers.

I ended up posting about the email discussion on my own blog. That post yielded dozens of comments of parents looking for more information about oat allergies—because there was nothing out there.

So, the time has come to start a resource for all of us to share our experiences.

While this site is called OatAllergy.com, other allergies will be covered. This is both to cater to parents of children with a wide variety of allergies as well as the fact that many allergy-related experiences (what to do about birthday parties, for example) are really relevant to all types of allergies.

What this site does need is your comments and input. So please, share your experiences, research, recipes, problems, and solutions. If you have ideas for blog posts of your own, please feel free to contact me at oatallergy@gmail.com.

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5 responses to “Welcome to OatAllergy.com

  1. We just had a blood test confirming my 9 month old daughter’s allergy to oats and eggs. I’ve been on the elimination diet for a couple of months, so I’m well acquainted with terms to avoid for dairy, etc., but I’m not so good with oats. “Avena sativa” is new to me (though the others seem self-evident). Are there any other terms that I should be on the lookout for? I’m especially interested in chemical names in skin care. For me, one of the first signs of her allergy was a bad reaction to Aveeno Baby products.

  2. Hi,
    Thanks for this website. It is nice to know that other people have this allergy – my doctor denied that it was possible! I figured out on my own through an elimination diet that an allergy to oats was causing bouts of Meniere’s disease for me. I’d always had mild reactions to oats – rashes, hives, diarrhea. When I figured out that I was loosing my hearing and having severe episodes of vertigo from an immune response to oats, it was a really easy choice to just eliminate oats from my diet and recover fully within a few weeks. Oats are hidden in so many foods though – look out for pizza doughs, most cereals, many crackers, vegetarian meat substitutes.

  3. Its nice to have a place to come for some info no this Allergy.

    I had consumed a mountain of oats through my life. Oatmeal for breakfast, cookies, granola, musilix etc. When I turned 36, I had a full blown reaction to a bowl of oatmeal ( fortunately, my wife was able to drive me to the E.R.) We thought it might be a fluke or the oats were contaminated.

    6 months later another occurance(Yes, another trip to the E.R.) from a Life cereal which contains oat flour. This time the Doctor prescribed a Eppi Pen. Now my life revolves around reading labels on everything and declining anything that I can’t be certain of. A allergy specialist has suggested swiching to TwinJec pen, and the advice that adult onset allergies are most time fatal if medical help isn’t provided. Symptoms may lessen with inital treatment, but can re-occur in as many as 24 hours later and still be fatal.

    As I learn more, I will post on this site.

  4. My daughter was diagnosed with an oat allergy (among other foods) at 15 months. We’ve cut out foods/lotions with oats, but I’m confused about something…Since oats are grown in close proximity to wheat and other grains (i.e. cross contamination in the field), should we also be avoiding products which contain those ingredients? Should I be buying “gluten free” products instead? Also, does the difference between “wheat free” and “gluten free” apply to us, and if so, how so? If anyone has any information on this, we’d appreciate it. I can’t seem to find it anywhere.

  5. Janet:

    When your daughter was diagnosed, was she checked for wheat? If she hasn’t seen an allergist yet, perhaps the allergist could test for both?

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